I paid for the hospital component of my surgery today. What with no health insurance it'll be about $2,500 in total. Depending on anaesthetist and pathology costs. I received the info pack from John James with all the info about surgery and prep work I need to do. I'm just starting to feel a little nervous. It probably won't hit me until the needle is about to go into my arm.
I am a little bit worried about the post-operative pain. I'm a little bit worried about having flesh carved off me. When I first came to grips with the necessity of this surgery it felt like amputation. Having gone through a grieving process it no longer feels like amputation, it feels closer in concept to having an appendix removed. My cunt will look different. It will have a different appearance, a different texture! That is so strange, the contours of my body will forever be different, a smooth one rather than a jagged landscape.
I've conveyed the story in bits and pieces, but I'll have a go at expressing it fully.
When I was about 7 years old I was playing in the bath tub when I discovered bodies were cool and fascinating. It felt extraordinary, the beautifulness and bizarreness of the human body. I think it started with discovering how cool fingers were when you really looked at them, the wrinkles and bends, the different shapes they could make, the fascination with toes and their similarities and differences with fingers (I think this started my habit of doing lots of stretches and things with my toes, something which is quite good for you). So for, I'm not sure how long, a period of time I'd spend ages in the bath marvelling at the human body. Eventually I happened upon my groin, which seemed very simple on a cursory glance, but I discovered to my amazement that it had all sorts of different bits and was quite interesting and strange... in a weird kind of way.
At about the same time as a precocious young child I knew about the basics of evolutionary theory and I also knew that Freud was a sexist dickhead who thought that girls had penis envy (I think my big brother introduced me to Freud as he would have been a precocious 12 year old at the time).
Freud pissed me off, understandably. So while I was thinking in the bath I thought... what if Freud got it wrong, what if girls aren't amputated boys, but penises are stretched girl bits... maybe cave men were created when cave women were wandering around the bush (so to speak) without much on and some women got their bits caught on barb-wire or prickly bushes and got stretched. So boys are just stretched girls, girls aren't amputated boys.
I was very pleased with this theory (which sans barb-wire is closer to biological theory) and being of a somewhat scientific mind decided to test this theory by seeing if there was any residual stretch left in female genitalia. I didn't want to get a big ugly stupid penis, but I wanted to see if there was just a tiny bit of stretch left that might indicate that once upon a time there was much greater stretchiness. So some gentle tentative tugging on different bits (whose names I would not learn for quite some time), and not much in the way of give until...
Until I gently tugged on my right inner labia, which seemed to stretch enormously! going froma small petite thing to nearly double in size. Talk about freak out city. I had damaged my beautiful neat girl bits and now one was much bigger than the other! Possibly that was latently there all the time, who knows, I certainly thought I had hideously damaged myself and ruined my girl bits and would no longer be symmetrical.
I hoped that it would shrink back in time. It didn't. It haunted me, I couldn't tell my parents I'd broken myself and dreaded what a doctor might say, so I kept it to myself (for nearly 20 years it would turn out). That labia is on the larger size of average, to this day it extends beyond my outer labia and is big, but not unhealthily painfully so... if only the story had ended there.
Haunted by my asymmetry this 7 year old (perhaps 8), took matters into her own hands and unable to shrink one labia, she decided to stretch the other labia to match. Unfortunately this labia was already quite smaller and thinner than the other labia and did not have much matter to stretch. But this young child was determined and stretched and pulled and evened things up... only the left labia was not a solid lip, it was more like a fan with the fabric taken away, pulled up pieces of flesh. My hope was that my body would fill in the gaps. It didn't. Indeed the wear and tear of everyday life on the groin plus hormonal growth of bits meant that I had strands of flesh with callused lumps at the end. The user pic being a mild example.
As a teen 14-15 horseriding was hell on occasion... I lost flesh from the pounding of the saddle. Sometimes I'd help bits on the way when the tissue had thinned near the callused lump through pinching through the tether of flesh with my fingernails. I said not a word and was secretly glad the damaged tissue was going away and being tough was an important part of my identity. I hated my oversized labia and wished parts of it would tear off, but it was firmly thick and healthy, miming cutting it off with a pair of scissors.
When I became 100% sexually active (virginity being a slippery term... but when inserting dicks got involved) at 18 I lost a lot more flesh. That was a lot of silent pain as there was a degree of tearing that was quite deep and slow, through a lot more tissue. Some got fingernail treatment as the flesh thinned around the callused end, some lost in the throes of passion (enjoying sex being in no small degree about grim determination and orgasm about finding the other side of pain), one rotated 360 degrees, went black, still wouldn't come off and was exceptionally painful to touch... so I amputated it with a pair of nailclippers in the end - although I nearly went to a doctor at that point. Having now spoken to medical professionals I realise how incredibly lucky I was, given how much bleeding can occur from cuts to this region. A chunk of flesh about the size of a fingernail tore off after much pain, it was a deep tear and I'd guided its progression so that the tear would curve an arc (rather than just tear deeper) and would in the process remove the worst of the tassels. I remember showing the chunk of flesh to my lover when he came home. It freaked him out a little I think, possibly recommended a doctor, but I down played it. No one else knew about the damage until this year. (edit, except I realise a small portion of people who read my LJ a long time ago - and it was a only a small segment of the tale, hideous tearing only told in a joking manner in the comments)
With that chunk the worst of the damaged material was gone. I could get on with things. As time passed I even grew happy with my big labia, it was part of me and I was one happy, whole, incorporated being. I loved my yoni and it was sacred and beautiful as it was. It's ironic that it was at a place of self acceptance and love of all my bits that the next part of the story happens.
I remember when I got together with wibble and was thus having sex on a regular basis I did check some of the remaining damage, had a think about how it was going and decided if I was careful it probably wouldn't cause me trouble for a while. I didn't mention my labia saga... you know, never quite got round to it, I was so used to just dealing with it. And then it flared up again badly this year. Some great foreplay one night and then... owww... to my credit I had reached a degree of trust and self assertiveness that when I felt a sharp pain like a knife cutting into my groin I only tried to ignore it for a little while before fessing up to the pain. So I lightly say it's probably ghost pain and tell wibble the story. Wibble seemed more than a little surprised that I'd never told him and that he'd never noticed. You see I have stealth labia, they fold down and look like normal labia especially these days when the most protuberant stuff has been torn off.
It wasn't ghost pain though, they were on the move and once awoken the pain became worse. I went to my doctor and told the story, tears surprising me. My doctor said she'd never seen anything like it and was astounded that no doctor had spotted it before - I refrained from telling her that she had done several gynaecological exams on me previously. Stealth Labia. Once I started talking about it I couldn't stop, colleagues at work, the quiz on LJ. It was strange the grief, some grief at the amputation, but more grief for that stubborn young woman, grief for the pain I'd silently endured, the surgery I'd performed on myself I could now view with horror. I had completely forgotten all those details... It's the healthy thing to do, but now that the pain had returned the memory was returning and it was time to grieve.
It's interesting how the healthy attitude towards my body as a young child (this is my body and my genitals and I say who goes near them) backfired on me a little. But then again, it only backfired in the short term, in the long term the same healthy attitude is what has helped me navigate the world of doctors and stand up to fuckwits.
I am a little bit worried about the post-operative pain. I'm a little bit worried about having flesh carved off me. When I first came to grips with the necessity of this surgery it felt like amputation. Having gone through a grieving process it no longer feels like amputation, it feels closer in concept to having an appendix removed. My cunt will look different. It will have a different appearance, a different texture! That is so strange, the contours of my body will forever be different, a smooth one rather than a jagged landscape.
I've conveyed the story in bits and pieces, but I'll have a go at expressing it fully.
When I was about 7 years old I was playing in the bath tub when I discovered bodies were cool and fascinating. It felt extraordinary, the beautifulness and bizarreness of the human body. I think it started with discovering how cool fingers were when you really looked at them, the wrinkles and bends, the different shapes they could make, the fascination with toes and their similarities and differences with fingers (I think this started my habit of doing lots of stretches and things with my toes, something which is quite good for you). So for, I'm not sure how long, a period of time I'd spend ages in the bath marvelling at the human body. Eventually I happened upon my groin, which seemed very simple on a cursory glance, but I discovered to my amazement that it had all sorts of different bits and was quite interesting and strange... in a weird kind of way.
At about the same time as a precocious young child I knew about the basics of evolutionary theory and I also knew that Freud was a sexist dickhead who thought that girls had penis envy (I think my big brother introduced me to Freud as he would have been a precocious 12 year old at the time).
Freud pissed me off, understandably. So while I was thinking in the bath I thought... what if Freud got it wrong, what if girls aren't amputated boys, but penises are stretched girl bits... maybe cave men were created when cave women were wandering around the bush (so to speak) without much on and some women got their bits caught on barb-wire or prickly bushes and got stretched. So boys are just stretched girls, girls aren't amputated boys.
I was very pleased with this theory (which sans barb-wire is closer to biological theory) and being of a somewhat scientific mind decided to test this theory by seeing if there was any residual stretch left in female genitalia. I didn't want to get a big ugly stupid penis, but I wanted to see if there was just a tiny bit of stretch left that might indicate that once upon a time there was much greater stretchiness. So some gentle tentative tugging on different bits (whose names I would not learn for quite some time), and not much in the way of give until...
Until I gently tugged on my right inner labia, which seemed to stretch enormously! going froma small petite thing to nearly double in size. Talk about freak out city. I had damaged my beautiful neat girl bits and now one was much bigger than the other! Possibly that was latently there all the time, who knows, I certainly thought I had hideously damaged myself and ruined my girl bits and would no longer be symmetrical.
I hoped that it would shrink back in time. It didn't. It haunted me, I couldn't tell my parents I'd broken myself and dreaded what a doctor might say, so I kept it to myself (for nearly 20 years it would turn out). That labia is on the larger size of average, to this day it extends beyond my outer labia and is big, but not unhealthily painfully so... if only the story had ended there.
Haunted by my asymmetry this 7 year old (perhaps 8), took matters into her own hands and unable to shrink one labia, she decided to stretch the other labia to match. Unfortunately this labia was already quite smaller and thinner than the other labia and did not have much matter to stretch. But this young child was determined and stretched and pulled and evened things up... only the left labia was not a solid lip, it was more like a fan with the fabric taken away, pulled up pieces of flesh. My hope was that my body would fill in the gaps. It didn't. Indeed the wear and tear of everyday life on the groin plus hormonal growth of bits meant that I had strands of flesh with callused lumps at the end. The user pic being a mild example.
As a teen 14-15 horseriding was hell on occasion... I lost flesh from the pounding of the saddle. Sometimes I'd help bits on the way when the tissue had thinned near the callused lump through pinching through the tether of flesh with my fingernails. I said not a word and was secretly glad the damaged tissue was going away and being tough was an important part of my identity. I hated my oversized labia and wished parts of it would tear off, but it was firmly thick and healthy, miming cutting it off with a pair of scissors.
When I became 100% sexually active (virginity being a slippery term... but when inserting dicks got involved) at 18 I lost a lot more flesh. That was a lot of silent pain as there was a degree of tearing that was quite deep and slow, through a lot more tissue. Some got fingernail treatment as the flesh thinned around the callused end, some lost in the throes of passion (enjoying sex being in no small degree about grim determination and orgasm about finding the other side of pain), one rotated 360 degrees, went black, still wouldn't come off and was exceptionally painful to touch... so I amputated it with a pair of nailclippers in the end - although I nearly went to a doctor at that point. Having now spoken to medical professionals I realise how incredibly lucky I was, given how much bleeding can occur from cuts to this region. A chunk of flesh about the size of a fingernail tore off after much pain, it was a deep tear and I'd guided its progression so that the tear would curve an arc (rather than just tear deeper) and would in the process remove the worst of the tassels. I remember showing the chunk of flesh to my lover when he came home. It freaked him out a little I think, possibly recommended a doctor, but I down played it. No one else knew about the damage until this year. (edit, except I realise a small portion of people who read my LJ a long time ago - and it was a only a small segment of the tale, hideous tearing only told in a joking manner in the comments)
With that chunk the worst of the damaged material was gone. I could get on with things. As time passed I even grew happy with my big labia, it was part of me and I was one happy, whole, incorporated being. I loved my yoni and it was sacred and beautiful as it was. It's ironic that it was at a place of self acceptance and love of all my bits that the next part of the story happens.
I remember when I got together with wibble and was thus having sex on a regular basis I did check some of the remaining damage, had a think about how it was going and decided if I was careful it probably wouldn't cause me trouble for a while. I didn't mention my labia saga... you know, never quite got round to it, I was so used to just dealing with it. And then it flared up again badly this year. Some great foreplay one night and then... owww... to my credit I had reached a degree of trust and self assertiveness that when I felt a sharp pain like a knife cutting into my groin I only tried to ignore it for a little while before fessing up to the pain. So I lightly say it's probably ghost pain and tell wibble the story. Wibble seemed more than a little surprised that I'd never told him and that he'd never noticed. You see I have stealth labia, they fold down and look like normal labia especially these days when the most protuberant stuff has been torn off.
It wasn't ghost pain though, they were on the move and once awoken the pain became worse. I went to my doctor and told the story, tears surprising me. My doctor said she'd never seen anything like it and was astounded that no doctor had spotted it before - I refrained from telling her that she had done several gynaecological exams on me previously. Stealth Labia. Once I started talking about it I couldn't stop, colleagues at work, the quiz on LJ. It was strange the grief, some grief at the amputation, but more grief for that stubborn young woman, grief for the pain I'd silently endured, the surgery I'd performed on myself I could now view with horror. I had completely forgotten all those details... It's the healthy thing to do, but now that the pain had returned the memory was returning and it was time to grieve.
It's interesting how the healthy attitude towards my body as a young child (this is my body and my genitals and I say who goes near them) backfired on me a little. But then again, it only backfired in the short term, in the long term the same healthy attitude is what has helped me navigate the world of doctors and stand up to fuckwits.


Comments
Hope surgery goes well.
And can I just add that stealth labia may now be my favouritist term ever.
Though not one that I imagine I will get many opportunities to use.
I haven't been looking for a place to publish, I did a bit of recearch and chatted to Jacinta and decided to focus my efforts elsewhere. Mordwen said a journo friend might be interested in interviewing my for Marie Claire, which would be cool if it happens especially if I had some web resources together by then - but given the vaguaries of journalism and the many factors I'm not holding my breath.
I think you're amazing to be able to talk about this. Has anyone been able to tell you whether you did actually 'damage yourself' way back when or whether this was just random, rare and a painful condition? I can't imagine that small time of pulling would have such an effect and I'm hoping you've forgiven yourself, as you couldn't possibly have known if it did.
While we're on the topic of journalists, I thought I'd mention that labia is the plural (lips). One is a labium.
My gyno's current theory is that the trauma caused what are similar huge skin tags to devlop. You know those funny skin flaps you can get some time, that can either hang around or be ripped off, little confused cells who stick out rather than lie flat with the other skin cells. Undifferentiated tissue, but of a non-cancerous kind.
This is backed up by teeny skin tags on my big labium (thanks) where the lip extends past the outer labia.
I think I did damage myself, labia stretching is certainly possible and a body modification practice in some parts (see previous labial links, for I now have the yoni tag). I'm sure stretching - tearing really on a prepubescent teeny tiny labia is not a recommended practice and there was damage done, and then my body massively overcompensated to trauma with scar tissue skin tag things.
And yeah, I've forgiven myself, I think the final stage of that was during the vagina monologues, after writing part of the story here and helping instigate those yonical celebrations (so I guess I did go public a little, but it was downplayed and back in the day when there were 4 people who read my journal and LJ felt a lot more private). I'd forgiven myself, but I hadn't grieved and recognised what a burden that kind of secret and unmentioned pain would have had on me.
My gyno, who has been in the game long enough that he politely inquired if I was born in Canberra and if so whether he delivered me! said that every time he does this kind of surgery he is astounded by the amount of blood. It's an area that will bleed a lot (which makes sense when you think about it).
I don't mind you passing stuff on, it is a public LJ... and it looks like there's a bit of overlap between her and me, as I'm a lip contributor too (although I would say to my shame not my best work) and hung out at the Vibe-wire festival!
Fingers crossed for your surgery.
I don't have much of a stomach and heart for medical things so you should have seen me read this holding and pulling on my hands and making all kinds of faces.
You tell this story of yours amazingly.
Funny, truthful and just so damn brave.
Thanks for sharing with the world.
Wow... not even a locked post.
You have my wishes for a quick and clean heal... that you'll be back to your amazing self within the shortest amount of time.
You'll be fine and you have all of our love & support.
Let us know if your story gets to the media... :)
I think the tricky bit will be not to push myself too hard and then pay for it later.
I have a game to playtest next sunday, the surgery being on Friday, although I am told I'm very welcome to postpone if necessary. MCing a YWCA event on the Wednesday and I have this expectation of myself to get a lot of writing done over that time as well!
So I think I'll have to manage myself so I don't over extend and leave myself weary for a long time (after my wisdom teeth were removed under twilight sedation I made dinner for dad 'cause he was quite unwell, indeed he was too sick to eat dinner, so I ate his dinner! Twilight sedation is pretty mild though and I was certainly laid out on the couch for a while).
OW!
OWWW!!!
*hugs*
It's funny how you take things for granted.
I imagine you have skills that you don't notice most of the time until someone else points it out to you. Disclosing things in public fora is the same for me! I guess my family has for such a long time disclosed things that normal folks don't talk about so openly ( http://aplaceof.info/margaret/index.h
I figure that while there may be a risk of harassment the cost benefit analysis was firmly in favour of talking about things openly. If I get harassed it's not about me, it's about whatever damage or harassment addiction that person is carrying. It was pretty easy in the end and not a matter for bravery - I use my bravery for those really scary tasks, like getting out of the house when I want to stay inside! That can be much harder.
I perhaps I'm using that other kind, when you do stuff and feel brave but in a snuggly kind of way. The sensation of 'I am being brave' without the fear hanging around to get in the way of the snuggly brave sensation... Confident, that's the word! I'm not feeling brave, I've done the bits that require I'm feeling confident and enjoying (on the most part)
I love telling stories, so it would be a shame not to share interesting tales :)
BTW, in case I haven't mentioned lately, you are amazing! I still really appreciate your help and support in getting my wonderful yonic tattoo (which, you may not remember, is also asymmetrical with the right side bigger : ).
And I promise I will finish my comments on "In her own words" soon.
It was wonderful to help you get a yonic tattoo, I'd forgotten it was asymmetrical until you reminded me :)
I haven't read the first comments yet :o !! looks like breathing space will be coming soon though.
Is there any chance you can be in Oz in March next year? I'd love you to have a role in the rituals of the wedlock of me and Wibble... we should probably get looking for a venue so we can set an actual date :)
I find myself wondering how rare you are and what your diagnosis is.
I am surprised that you could do that sort of damage to yourself. I hadn't thought that the juvenile labia were so sensitive to trauma from yourself which makes me wonder if there is something underlying causing it.
There may have been something vulnerable about that labia. I have a vague recollection that it developed a kind of chalky texture which made stretching/damaging easier - no bleeding, almost a crumbling flesh, I think I attributed it to soaking in the bathtub to long. It didn't have that texture later.
My family does have a history of overactive immune systems and allergies... oh, and being mysteries of medical science defying diagnosis :)
Great post. Honest and open about a very personal topic. And it's now more intense from having actually met you. Thank you.
Good old lily, bringing people together through their shared genitalia woes *grin*
Have your doctors explored the possibility of dermatitis making it worse? Apparently a lot of doctors don't have that depth of knowledge. Getting cortisone/prednisone in tablet form might help if it is, it was amazing the difference it made for me and got the swelling under control so that I could heal properly and apply prednisone topically without screaming. Prednisone and lucas paw paw ointment (I'm not sure if it's available in the states) were life savers for me.
Well over a year down the track I still use a combination of sigmacort (topical cortisone cream, about once a week) and hypo-allergenic moisturiser/pawpaw ointment (in a petroleum jelly base) ever other day. Sigmacort more frequently when I'm menstrual as that irritates everything. I probably will for the rest of my life, but it's a simple enough self care.
I've friended you so that if you go to my gallery you can see the photos of immediate post surgery. Apparently my surgery was very neat, if using an outdated technique (the most contemporary technique doesn't have stitches and I understand is less of a straight amputation).
I hope you find it useful, and if you don't mind me asking, how did you find my blog?
Best wishes
L
At the end of the day, although I thought masturbation deformed me the biggest factor in the end turned out chronic lichenous dermatitis, something most gynecologists and gps know nothing about, despite a lot of women suffering from dermatitis in the groins.
I'd ignore before and after photos, genitalia are so varied it would be impossible to capture all the different healthy looks. My healthy look these days involves two funny looking stumps and a strange pointy bit near my clitoris and my gyno was highly skilled and experienced in the surgical technique - he was just a bit freaked by what he'd never seen and cut out a lot of tissue (possibly worried it was proto cancerous).
Focus on comfort and usability, ignore the visual. If the pain is eliminated/managed 'overgrown' can mean covered, snug, protectively wrapping, bigger than most but ok or full of character depending on how it looks. They really are the snowflake of the human body and come in just about every shape and size.
My other thought (which you may well know already) is psychological closure won't come with surgery, closure is more complex and layered than that and layered processes that take time are perfectly healthy. Having chatted to other folks it's now my philosophy to seek out psychological support for signficant/chronic health events. Pain has such a huge psychological impact seeing a counsellor/mental health professional is right up there with eating properly and exercising in terms of investments in good health.